In 2017 Brian Duffell spent his final days in the hospice and his wife Margaret and the rest of the family were blown away by the care, support and friendliness they were shown by all the Eden Valley Hospice team. Brianās stay in the hospice allowed Margaret, family and friends to make memories that will last for the rest of their lives.
This is Margaretās story:
In Margaret Duffellās eyes, Eden Valley Hospice was responsible for giving her family the greatest gift possible when her husband Brian was dying… time.
Brian died at the hospice in December 2017 and left behind an incredible legacy following his decades of service to Armstrong Watson accountants, his many years playing in a band and his football coaching. But it was Brianās mantra of āthe best thing you can give anyone is your timeā which his family were incredibly thankful for in the last few days of his life, as this way of living his life had come full circle in the hospice.
āThat was Brian’s expression and thatās what we got, it came true for me,ā Margaret said.
Brian and Margaretās story begins back in 1961 while they were both working at the tax office. They hit it off at a Christmas party ā at which Brian was both playing in a dance band with his dad and organising the event – and started going out. Two-and-a-half years later they were married and had two children ā Mark and Anita.
In the following years Brian moved on to work at Armstrong Watson as Tax Manager ā a job he loved ā continued to play in dance bands and coaching aspiring footballers in Carlisle, even training a young Steve Harkness who went on to play for Liverpool FC in the 1990s.
Despite being a leader at the accountancy firm and being busy with musical and sporting commitments, Brian was a committed family man and loved spending time with his children and five grandchildren.
It was in December of 2017 that Brian came into the hospice following a cancer diagnosis earlier that year, having already lived with Alzheimerās for the two years beforehand. Brianās referral to the hospice came following home visits from Macmillan Cancer Support and Hospice at Home with professionals noticing heād deteriorated in quite a short space of time.
It was then that they told Margaret theyād liaised with Eden Valley Hospice and had secured him a bed. Margaret praised the work of all those involved with transferring Brianās care, thanking them for making a difficult situation easier with their support.
His giving of time wasnāt the only thing which came full circle for Brian at the hospice. Heād grown up in the Harraby area of Carlisle and was assigned the āHarrabyā room in the adult ward.
Margaret says: āOnce we got in, you didnāt really have to think, everything was done for you. He was looked after, I didnāt have to do anything, I was able to just be his wife.
āI didnāt have the worry, I was able to just sit with him and be with him, I didnāt have to worry about everything else. They took the responsibility off me, so I could just sit with him, and thatās what you want. They did absolutely everything, nothing was every any bother.
āWhen he came in here, we couldnāt speak highly enough of the staff, they really were absolutely fabulous. They just couldnāt do enough for you. They said to us because they knew it was Nickyās 18th birthday (Brianās grandson) if you want to do something here you can, they said theyāve had all sorts of things here, they were really, really lovely and nothing was too much trouble.
āI remember, we were just sitting there, we had the television on low and they came in and said we didnāt have to have it on low, that we should treat this like our home and do what we liked. Nicky brought his presents here and opened them, we brought a cake up on the Sunday and did as much as we could with him.ā
It was important for the family not to stop celebrations for Nickyās birthday, when it wouldāve been very understandable to do so.
āWe said your granddad wouldnāt have wanted that,ā Margaret adds.
āEverything would have to be as it was planned because he wouldāve been furious if weād cancelled it. Everyone had a good time at his party, and I went for a bit, it was difficult, but I did it for Nicky. Brian wouldnāt have wanted it spoiled.ā
Although the situation was extremely tough, Margaret cannot speak highly enough of the care the hospice provided to Brian and his family.
āBeing in the hospice made a hard time easy,ā adds Margaret.
āThey came in and just made sure we were constantly OK. When other family members all went to get ready for the party (Nickyās 18th) on the Saturday night one of the nurses came in and brought me something little to eat, she said āyouāll need it because youāre going outā and she didnāt have to do that.
āThey left me on my own if I wanted to be but they would constantly pop in to make sure I was OK. You wouldnāt get that in a hospital, I know the staff there canāt, but the staff here have such a lovely way with them, so caring, so thoughtful. Itās a very special place.
āIt gave us the time we probably wouldnāt have got anywhere else. Apart from going out for a couple of hours and on the Sunday, I was in here all the time. So I knew that he was OK.ā
Brian died after five days in the hospice, but his memory lives on for all those who knew him. Everybody remembers the ālovely manā he was and Margaret was comforted by the collection of cards and comments received after he passed away.
Margaret is keen to spread the message Eden Valley Hospice and how vital it is that the charity remains at the heart of the community for many years to come.
āIt gives people the chance like I did and get that special time with them that you might not get any other time, I just think we need these sort of places,ā she adds.
āWithout the hospice we wouldnāt have the memories, because we could sit and talk about all sorts of things, whereas elsewhere you wouldnāt have had that. It went full circle because he gave everyone his time. Brian wouldāve done anything for anybody, he was known for that.ā